Happy 18th Birthday, Jax

It’s been a while since we’ve celebrated Jaxson’s birthday in this space. But this year is a big one. Our little guy is 18 today. 18! Yay, you can go to jail, vote, rent a VRBO or go to the military. Most of the milestones are boring.

To honor Jax’s 18th birthday, we wanted to do something that he might do today. Or, more likely, what the wife and I make him to today to celebrate him.

Today, if you’d like to join us, we’ll be scratching off lottery tickets as we meet as a family at Red Lobster, one of Jax’s favorite places. Buy a scratcher, join us, and best of luck!

Later this morning we’ll be pulling the kids out of school early, grab some lunch and head out to the Natural History Museum in Los Angeles, as we do every year to celebrate Jax’s birthday.

My wife will be visiting his preschool teacher and providing them goodies as her class sings Happy Birthday and celebrates him. It’s these grounding traditions that mean so much to us.

There is so much imagination that creeps into my head today. What would he look like? What would he be into? Would he still be playing baseball? Is he going to college next year? It’s hard to think about – both to picture and, it just freaking hurts the heart.

So today, as you think of it, grab a scratcher. Watch Cars or Toy Story, maybe go to Red Lobster or put together a dinosaur puzzle. Just think about our boy and help us celebrate him.

Happy Birthday, Jax. My love for you knows no limits. My heart aches beyond comprehension. And my soul longs to be with you again.

Remembering Jax and CHOC Walk 2024

Twelve years feels like a liftetime ago. It might as well be 100. Life is so different. I am so different. But not for the better.

Memories fade and we hang onto what we can to remember everything we can about Jax. Video, like the one below, helps. What I wouldn’t give to have him in my arms one more time.

Tonight our family will go watch the Angels battle the Oakland A’s to determine the worst team in the American League. What happens on the field is an afterthought. Instead, we will focus on our missed boy. His love for baseball. His smile. His voice. His kindness and his love. Jax is the star at the stadium tonight for us.

Enjoy the video below and remember our sweet boy with us today.

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CHOC’s Walk in the Park returns July 21. Whether it’s Disneyland or CHOC’s own determination, the cost to qualify as a walker has shot up astronomically over the years, so we’ve scrapped trying to get a full team going.

However, our family continues to walk in Jax’s memory. If you would like to donate to our team as we aim to raise hospital funds in his memory, click here. Click on the dollar sign for the member you want to donate to.

I tried writing a post entitled Why We Support CHOC to explain the importance giving back in Jax’s honor is to us. It started like this:

Jaxson died at 9:26 p.m. at Children’s Hospital of Orange County on June 24, 2012. He wasn’t born a preemie or cured for cancer at the hospital, much like many of the participants for Sunday’s CHOC Walk 2013. For about three hours, the hospital staff did everything they could to save our boy. But it was after he left us that the CHOC staff’s grace, compassion and solace left an overwhelming mark on my wife and I. We lost our boy, but it was if they lost him with us.

The rest of it is deeply intimate and I decided against posting it. I tried to figure out a way to make it less intimate, but to me, it loses the impact. Just know that for us, it’s a very meaningful cause that honors Jax’s very special spirit.

Thank you for remembering our sweet boy today and in July with team Iron Jax.

We love you all.

 

Happy 15th Birthday, Jax

The wife text me the image below this morning. I bawled immediately. The hurt rushed back to my heart and my throat swelled. It wasn’t long enough.

We celebrated Jax’s 15th birthday yesterday. Phoenix, who rarely watches anything other than Minecraft content on YouTube, chose Iron Man 3 to watch in the morning. Jax loved Iron Man as a super hero, and his baseball jersey was 3, so it seemed like a good fit and I loved his decision to honor Jax.

As we do, we visited the Natural History Museum of Los Angeles, where we learned that California has a state dinosaur. Who knew?!? It’s the Augustynolophus, which is a 10-foot tall omnivore with a duck-shaped bill and lived during the same period as the tyrannosaurus and triceratops. The state signed a bill in 2017 awarding Auggie (my nickname for it) the state’s official dinosaur. And despite annual visits to the dinosaur hall at the museum, this is the first I’m hearing about it.

Later we met up with family at Red Lobster for dinner, which is where we celebrated Jax’s fourth and last birthday with him on earth. We sang and blew out candles.

This year there were no signs, like in previous years. No incredible stories or happenstances. It was a day filled with missing our boy, celebrating those four years that we had with him and aching for more.

Happy Birthday, Jax. My love for you knows no limits. My heart aches beyond comprehension. And my soul longs to be with you again.

Skylar Brown 1985-2023

We missed you, Skylar. Thank you for the enormous love you showed Jax and all of our children.

Jax Remembrance June 24 – Angel Stadium

It’s been a long time since we have been able to all get together to remember Jax. Let’s change that.

The Angels host the Seattle Mariners on June 24 for their Christmas in June promotion (Shohei Ohtani snow globe giveaway!). We’re aiming to buy tickets in the $20-$25 range and we will send an update once the final cost is finalized.

At this point, we need to know who would like to come so we can secure a range of seats all together. Please let myself or Kristina know if you’d like to join us.

Thank you for your continued love and support of our family as we remember Jaxson forever.

Happy 14th Birthday, Jax

We’re back, baby.

After spending last year circling the grounds of Exposition Park in the rain and munching on Red Lobster takeout at home, the Natural History Museum of Los Angeles has re-opened, and we’ll be back there today to celebrate Jaxson’s birthday. After, we will head over to Ruby’s Diner in Orange at the train station and meet up with family to bring our tradition full Circle (city of Orange joke).

Aside from his obsession of dinosaurs and love of trains, Jax was intrigued by Ghost Face, the villain from the Scream movies. He drew a picture of Ghost Face, which is tattooed on my wrist.

When he was 3 I let him watch the beginning of Scream, up until the part that the killer knifes Drew Barrymore in the back. He played the Scre4m mobile game on my iPad (in which one basically plays as Ghost Face and hunt down teens while avoiding the police). He begged to dress ups as Ghost Face for Halloween, but we said he had to be 8. When he asked how old he had to be to watch the rest of the movie, I told him 13. But deep down, I knew I’d let him watch it at 10. Questionable parenting aside, I couldn’t wait to watch horror movies with him.

So tonight, after we chug down some shakes for dinner and drop the kids off at home with grandma, the wife and I will head to the movies to watch the new Scream movie (Scream 5? I don’t even know), which came out earlier this month and has received good reviews. In my fantasy of an alternate universe where Jax didn’t die, we would have taken him opening night, or maybe with a few of his friends as part of his birthday celebration. That’s if he wasn’t too cool at 14 to hang out with his parents.

If you want to celebrate Jax with us this weekend, put together a puzzle. Watch Jurassic Park. Ride a train. Go see Scream. Smile. And maybe cry. Because I will.

Happy Birthday, Jax. My love for you knows no limits. My heart aches beyond comprehension. And my soul longs to be with you again.

Happy 13th Birthday, Jax

Signs signs

Everywhere there’s signs…

— Five Man Electrical Band, 1971

This describes my wife’s last week. As Jaxson’s birthday approached, she’s been hit with sign after sign.

Last week, on their way home from preschool, Phoenix grilled my wife with questions about Jax. How did he die? Where is his body? My wife was having a particularly hard week emotionally. She gave him simple answers. Our family talks about and includes Jax constantly and both little boys talk like they know him. But the topic of his death just doesn’t come up, so for Phoenix to ask a week before his birthday was curious.

A day or two later, a co-worker of my wife approached her at the end of her shift at the hospital. The co-worker told my wife that she dreamt of her and Jax. Now, understand that this coworker doesn’t know a lot about Jax nor our home. She explained her dream to my wife. My wife was sitting in a barstool and Jax was standing next to her, trying to get her attention. But my wife was distracted by our twins asking about hand gel. The co-worker said that she sensed Jax trying to sit in my wife’s lap. But he’s no longer 4-years-old. The co-worker described Jax as 12 or 13. Again, the co-worker doesn’t know that Jax was 12 at the time of the dream or that we have bar stools at a counter in our home. She explained to my wife that Jax wants her to know that he is constantly around. And to us, he always seems give her signs when she needs to see them the most.

Over the weekend my wife was shopping at a flooring store. She said that in her time there, two different families were shouting “Jax” or “Jackson” to each of their boys. My wife said that the boys were 4 or 5-years-old.

Yesterday, things ramped up. My wife saw a firetruck, Jax’s signature sign to her. She took all the kids to In N Out to grab lunch while I worked. At the window, she was given five kids stickers, without the In N Out employee asking if she wanted any. We have four children alive, with Jax being the fifth. Last I noticed one of our children placed the stickers next to Moo and PD, his favorite stuffed animals.

Finally, my wife was in line at the grocery store to pick up cupcakes to take to Phoenix’s preschool. Phoenix has the same teacher Jax had and every year we bring cupcakes to her class so they can celebrate Jax’s birthday. In front of my wife was a person with two blue balloons that read “Birthday Boy.” Right behind her a woman held a red and black balloon, the same color balloons that my mother-in-law buys for us to release on his birthday.

Our birthday plans for Jax are slightly different this year. I’ll drop Phoenix off at preschool with cupcakes, plates and napkins and his class will sing to Jax. After we pick him up we’ll head out to Los Angeles. While the Natural History Museum of LA is closed, we’ll walk around the property, likely in the rain, yearning for a sense of normalcy to honor our missed boy. Later, we’ll pick up some take out from Ruby’s Diner or Red Lobster – two of his favorite restaurants – and sing Happy Birthday to him.

Today, keep an eye out for fire trucks, black and red balloons or anything that reminds you of Jax. Everywhere there’s signs.

Happy Birthday, Jax. My love for you knows no limits. My heart aches beyond comprehension. And my soul longs to be with you again.